Act Your…What?

“You don’t act like a disabled person.” Um, not sure what you mean. “You need to start acting like a person with a disability.” Yeah, that didn’t clear anything up. Can you be more specific? “The way you are, the way you act, the way you live. That’s not how someone with your condition should... Continue Reading →

Double Shot

I was three years old when I was diagnosed with chronic renal failure. There was a mistake, an ego trip, and it all led to my life being interesting? Is that the right word? It wasn’t...boring? Wow. Okay. No, not even close, but I do understand the confusion. All you hear about are the exploding... Continue Reading →

Can You See Me Now

Have you ever been invisible? Looked through. Talked over. Scream and shout but no one hears you. Seriously consider walking through that wall over there because you must be a ghost.  When my kidneys shut my body followed. My bones became brittle and every step created micro-fractures. My heart doubled in size. The fluid around... Continue Reading →

The Bubble

Being diagnosed with a chronic illness has a profound impact on a life. It’s a thunderclap that reverberates through our bodies, minds, and families. It enshrouds our lives and takes over. It becomes our whole world.   Before my diagnosis, I was a normal kid. I loved going to the beach, playing with my dog,... Continue Reading →

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